Down Syndrome Resources

Partner Organizations

Dr. Martha Hall partners with many organizations that provide resources for individuals, families, and other groups coping with Down Syndrome. These organizations are listed here, along with contact information, as a resourse for all website visitors. 

Don’t see your favorite Down Syndrome organization here?

Please provide their information on this form so we can add them.

Nemours Children’s Health System

302-651-5916

Christiana Care

800-693-CARE

Kennedy Krieger Institute Down Syndrome Clinic

443-923-9400

[email protected]

Working out of Maryland. Affiliated with Johns Hopkins Medical Institutions. Serves all ages.

Nemours Children’s Health System

Down Syndrome Association of Delaware

Easterseals

321 Foundation

Therapy for Kids

Gigi’s Playhouse Lanchaster

Children’s Hospital of Philadelphia

267-426-5283

Affiliated with the Children’s Hospital of Philadelphia. Serves all ages.

DSANV: The Down Syndrom Association of Northern Virginia

Gigi’s Playhouse: NJ

EDPSC: Eastern PA Down Syndrome Center

610-402-0184

[email protected]

Working out of Pennsylvania.

Withrop Pediatric Associates

516-663-2112

[email protected]

Working out of New York. Affiliated with Winthrop University Hospital. Serves pediatric ages, birth through 19 years old.

Yale New Heaven Hospital

203-688-6361

Working out of Connecticut. Serves adults.

Boston Children’s Hospital

857-218-4329

Working out of Boston. Affiliated with the Children’s Hospital Boston. Serves pediatric ages, birth through 19 years old.

Children’s Hospital of Kings Daughter

Down Syndrome Center of Western Pennsylvania

412-692-7963

[email protected]

Blic Clinic

330-762-5425  

Down Syndrome Program in the Neurodevelopmental Center

330-762-5425  

Duke Children’s Comprehensive Down Syndrome Program

919-613-8307 

AHRC New York City 

212-780-2503

Working out of New York. Serves ages 5 through adult.

Advantage Care Health Centers

516-686-4400

Working out of New York. Serves all ages.

Down Syndrome Clinic

614-722-4050

Duke Children’s Comprehensive Down Syndrome Program

919-613-8307

Euro–Peds National Center for Intensive PT

248-857-6776

[email protected]

Ohio State Adult Down Syndrome Clinic

888-329-1654 or 614-293-6694

Developmental Pediatrics

757-668-7473

Down Syndrome Center

704-381-6810

The Jane and Richard Thomas Center for Down Syndrome

513-636-4611

Fax: 513-636-3800

St. Vincent Children’s Hospital through Down Syndrome Clinic

317-338-5288

Working out of Indiana. Working with the St. Vincent Hospital through Medical Genetics. Serves pediatric ages.

Anne Whitehill Down Syndrome Clinic

317-944-4846  

Working out of Indiana. Working with the Riley Hospital for Children at Indiana University Health. Serves pediatric ages, birth through 19.

Greenwood Genetic Center 

888-GGC-GENE or 864-941-8100

Working out of South Carolina. Serves all ages.

MUSC Down Syndrome Center

843-876-0444

Working out of South Carolina. Working with the Medical University of South Carolina. Serves pediatric ages, birth through 21.

Deaconess Riley Children’s Specialty Center

800-276-5235 or 812-858-3131

Working out of Indiana. Working with the Deaconess Hospital and Riley Hospital for Children. Serves pediatric ages, birth through 19 years old.

Children’s Hospital at Vanderbilt

866-900-3696 or 615-343-3696

Working out of Tennessee. Affiliated with Monroe Carell Jr. Children’s Hospital at Vanderbilt. Serves pediatric ages.

Down Syndrome Center at Hope Haven

904-346-5100

Working out of Florida. Working with the Hope Haven Children’s Clinic and Family Center. Serves pediatric ages, prenatal through 21.

Mailman Center for Child Development

305-243-6464

Working out of Florida. Working with the University of Miami Hospital, JM Hospital. Serves all ages.

Emory University Down Syndrome Clinic

404-778-8484

Working out of Georgia. Working with the Emory University Department of Human Genetics. Serves pediatric ages.

Adult Disability Medical Home, Inc. (ADMH)

678-595-4854

Working out of Georgia Adult Disability Medical Home, Inc. at Urban Family Practice Associates. Serves adolescents and adulthood ages, 12 and older.

Neurodevelopmental Disabilities and Down Syndrome Clinic

630-620-4433

Working out of Illinois. Working with the University of Chicago and Easter Seals DuPage & Fox Valley. Serves all ages.

Section of Developmental and Behavioral Pediatrics

773-702-3095

Working out of Illinois. Working with the University of Chicago. Serves pediatric ages, birth through 18 years old.

The Pediatric Down Syndrome Clinic

708-684-2529

Working out of Illinois. Working with the Advocate Children’s Hospital-Oak Lawn. Serves pediatric ages, birth through 18 years old.

Children’s Hospital of New Orleans Down Syndrome Clinic

504-896-9254

Working out of Louisiana. Working with the Children’s Hospital of New Orleans. Serves all ages.

Down Syndrome
Follow-Up Clinic

501-364-4053

Working out of Arkansas. Working with the Arkansas Children’s Hospital. Serves pediatric ages, birth through 21.

UAMS Adult Medical Genetics/Down Syndrome Clinic

501-526-4020

Fax: 501-526-4029

Working out of Arkansas. Working with the University of Arkansas Medical Sciences, College of Medicine, Division of Genetics. Serves adolescents and adults.

Albert Pujols Wellness Center for Adults with Down Syndrome

314-576-2300

[email protected]

Working out of Missouri. Working with the St. Luke’s Hospital. Serves ages 17 and older.

Children’s Hospital,
St. Louis

314-454-6093

Working out of Missouri. Working with the St. Louis Children’s Hospital. Serves pediatric ages , birth through 21) years old. Tuesdays Only.

Down Syndrome Clinic of Wisconsin

414-266-6259  

Working out of Wisconsin. Working with the Children’s Hospital of Wisconsin. Serves all ages.

Baylor Transition Medical Clinic

713-798-2500

Working out of Texas. Working with the Baylor College of Medicine, McNair Campus. Serves ages 14 and older.

Children’s Health

214-456-2357

Working out of Texas. Working with the Children’s Medical Center Dallas. Serves pediatric ages, birth through 18 years old.

Healy Clinic Down Syndrome Services

319-353-6900

Working out of Iowa. Working with the Center for Disabilities and Development, University of Iowa Children’s Hospital. Serves all ages.

Gundersen Health System

Adult: 608-775-2789
Pediatric: 608-775-2771

Working out of Wisconsin. 

Children’s Minnesota

612-813-6777

Working out of Minnesota. Working with the Children’s Hospitals and Clinics of Minnesota. Serves pediatric ages, birth through 18 years old. 

Health–East
Maplewood Clinic

651-232-7800

Working out of Minnesota. Serves all ages.

Childeren’s Mercy Down Syndrome Clinic

816-960-2856

[email protected]

Working out of Kansas. Working with the Children’s Mercy Hospital. Serves pediatric ages, birth through 18 years old.

Sanford Children’s Down Syndrome Clinic

800-850-0064

Working out of South Dakota. Working with the Sanford Health. Serves all ages.

Stanford Health

701-234-6600

Working out of North Dakota. Working with the Stanford Clinics. Serves pediatric ages, birth through 21 years old.

Denver Adult Down Syndrome Clinic

303-436-6220

Working out of Colorado. Working with the Metro Community Providers Network. Serves ages 14 and older.

Shodair Hospital Genetics Department through Clinics

406-444-7530

Working out of Montana. Working with the Shodair Children’s Hospital. Serves all ages.

Down Syndrome Clinic at Primary Children’s Hospital

801-662-1600  

Working out of Utah. Working with the Primary Children’s Medical Center. Serves pediatric ages, birth through 18 years old.

Pediatric Down Syndrome Clinic

602-933-3617

[email protected]

Working out of Arizona. Working with the Barrow Neurological Institute at Phoenix Children’s Hospital. Serves ages birth to 18 years old.

Rady Children’s

858-246-0794

Working out of California. Working with the Rady Children’s Hospital San Diego and the San Diego Down Syndrome Action Parent Group. Serves ages birth through 5 years old.

UCSD Adult Down Syndrome Clinic

858-657-8540

Working out of California. Working with the UC San Diego Health System. Serves adult 18 and older.

CHOC Children’s Down Syndrome Program 

General Information: 714-509-3609

Appointments: 888-770-2462

[email protected]

Working out of Los Angeles. Working with the CHOC Children’s through Children’s Hospital of Orange County/Down Syndrome Association of Orange County/UC Irvine Down Syndrome Clinic. Serves pediatric ages.

UC Irvine Adult Down Syndrome Clinic

714-456-8443

Working out of Los Angeles. Working with the UC Irvine Medical Center/University of California, Irvine/CHOC Children’s, Orange County. Serves adults.

Center for Down Syndrome

650-723-6858

Working out of California. Working with the Lucile Packard Children’s Hospital at Stanford. Serves pediatric ages, birth through 18 years old.

Doctors’ Research

805-489-7185

[email protected]

Working with the Down Syndrome through Epilepsy Foundation. Serves all ages.  

Child Neurology Clinic 

855-722-8273

Working out of California. Working with the University of California, San Francisco. Serves pediatric ages, birth through 18 years old.

MassGeneral Hospital Down Syndrome Program

617-643-8912

[email protected]

Working out of Massachusetts. Working with the Massachusetts General Hospital. Serves all ages.

Down Syndrome Center of UMass Memorial Medical Center

508-334-1000

[email protected]

Working out of Massachusetts. Working with the UMass Memorial Medical Center, Serves pediatric ages.

Children’s Neurodevelopment Center

401-444-5685

Working out of Massachusetts. Working with the Rhode Island Hospital, Brown University. Serves all ages.

Division of Human Genetics

860-523-6470

Working out of Connecticut. Working with the University of Connecticut Health Center. Serves all ages.

Down Syndrome Clinic at the Alfred I. du Pont Hospital for Children

302-651-5916  

Working with the Alfred I. du Pont Hospital for Children through Medical Genetics. Serves pediatric ages, newborn through 21 years old. 

University of Maryland Pediatric Behavioral and Development Clinic

410-706-2300

Working out of Maryland. Working with the University of Maryland. Serves pediatric ages, 3 through 21 years old.

Robert Warner Center for Children with Special Needs

716-878-1271

Working out of New York. Working with the Women and Children’s Hospital of Buffalo. Typically serves ages under 8 years old.

Rainbow Babies and Children’s Hospital/Rainbow Child Development Clinic

216-844-3230

Appointments: 216-844-7700

Working out of Ohio. Working with the Rainbow Babies and Children’s Hospital. Serves pediatric ages.

Aging and Developmental Disabilities Program

978-851-7321  

Working out of Massachusetts. Working with the Massachusetts Dept of Developmental Services and Tewksbury Hospital. Serves adults, typically 35 years and older.

In addition to her role as the Director of Innovation of Health Sciences at UD, Dr. Hall is an assistant professor in Health Sciences with affiliation in the Fashion and Apparel Studies Department and the Horn Entrepreneurship program. Her academic work inspires design challenges augmenting human performance, solving issues of sustainability and beyond.

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